Canadian Congenital Heart Alliance

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Fontan, heart, heart defect, heart disease, heart month, CHD, congenital heart disease, patient education, CHD education, congenital heart defect,

 

The 2022 Fontan Education Day took place on April 24, 2022. Be sure to check back shortly for information and liks to the content from the Education Day.

Be sure to check out the Canadian Fontan website and patient registry, for individuals and familys of all ages with Fontan  https://canadianfontan.com/

 

 

News
jennifer
November 5, 2021
0
Online shopping image

Opportunity for small businesses! CCHA will be holding our second annual Virtual Holiday Market between November 22nd and December 5th.

If you are a small business interested in participating and supporting CCHA please contact robbyn@cchaforlife.org by November 12th, 2021.

News
jennifer
February 12, 2021
0
Illustration of Penelope

 

The Canadian Congenital Heart Alliance is thrilled to announce the launch of a children's book "Penelope goes for her heart checkup".

Follow Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’ with her Heart Team in this beautifully illustrated book for children ages 5-8. 

To learn more and download the book visit https://www.cchaforlife.org/penelope-goes-her-heart-checkup

KIDS ACTIVITY ALERT!!!  To be a part of Penelope's journey, download the colouring page below. Colour Penelope and her Heart Team and take a pic of the completed colouring page, tag us...

Illustration of Penelope

 

Nous sommes ravis d'annoncer le lancement de notre version française "Pénélope va chez le cardiologue" en février 2023. Cliquez ici pour en lire plus

The Canadian Congenital Heart Alliance launched their children's book "Penelope goes for her heart checkup" in February 2021. We are thrilled to announce the launch of our French version “Penelope va chezle cardiologue” for CHD Awareness Week February 2023.

This illustrated book for children ages 5-8, follows Penelope - a young girl - as she travels to the hospital for her ‘heart checkup’. Reading this story with your child a few days before...

Advocacy information for parents and adults with CHD

 

For individuals and parents of a child living with a congenital heart condition, self-advocacy skills are necessary to communicate with all their health care providers, manage their day to day activities and make effective use of community resources.

What is Self-Advocacy? Self-advocacy is when a person is able to speak up in order to communicate their needs. In medical settings, self-advocacy strategies are helpful to make sure you and/or your family are understood, that your needs are being met, and that you have understood the information and advice you've been given by your healthcare...

Scrabble tiles with letters spelling Mental Health

Image by Wokandapix from Pixabay

Congenital heart disease affects over 257,000 Canadians. Many experience mental health issues living with their CHD.

CCHA conducted a Mental Health survey* in October of 2020. We received 66 responses from across Canada.

88% of adults living with #CHD have experienced mental health challenges at some point.

75% of those living with CHD have discussed mental health concerns with a healthcare professional. Only 41% have been referred for mental health services by those same providers or another healthcare provider?

46% of those living with CHD don’t feel like...

 

From 2016 to 2018 the Canadian Congenital Heart Alliance (CCHA) partnered with CHEO's HALO Research Institute, and recreational facilities in your local community to deliver Fearless Physical Activity events for children, teens, and adults living with congenital heart disease (CHD) across Ontario through funding from the Province of Ontario. Each season, Fearless Physical Activity events were held in London, Ottawa, Thunder Bay or Sudbury and Toronto for all ages and all levels of ability and experience! These events were very successful in creating new connections amongst families living with...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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