Canadian Congenital Heart Alliance

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News
jennifer
January 10, 2022
0
Heart Defect, heart disease, virtual camp, Fontan, congenital heart disease, CHD

 

CCHA is pleased to partner with Virtual Heart Connection for their 2nd annual Virtual Fontan Heart Camp. 

To register https://forms.gle/W8rgkjNAzpAX5wVW6

Event Date: Saturday, February 26, 2022
Event Time: 9am – 3pm (Mountain Time)
Event Agenda: View Agenda Here
Event Location: Online
Eligibility: Children between the ages of 8-15 who had Fontan surgery and are followed by a cardiologist anywhere in Canada!
RSVP EXTENDED! Register by January 22, 2022 – Space is Limited!

Event Description

Join us on Saturday, February 26, 2022 from 9am – 3pm (Mountain Time)
for the second Western Canadian...

News
jennifer
February 23, 2021
0
Karen Vecchio MP reading statement for CHD Awareness Week in House of Commons virtually

 

#CHDAwarenessWeek may be over but we continue to work year-round to improve #CHD resources, support, and research.

Special appreciation goes to Karen Vecchio, Member of Parliament (Elgin-London-Middlesex) for her statement in the House of Commons recognizing Congenital Heart Disease Awareness Week (Feb 7-14) and supporting Canadian families living with Congenital Heart Disease.

Karen Vecchio, MP is Deputy House Leader of the Official Opposition.

https://fb.watch/3Qga8qeI42/

News
jennifer
February 6, 2021
0
Canadian flag

    City of Edmonton Proclaiming CHD Awareness Week  City of Calgary Proclaiming CHD Awareness Week  City of Chestermere Proclaiming CHD Awareness Week

Excited to see Alberta is leading the charge this year, proclaiming CHD Awareness Week in Edmonton, Calgary and Chestermere.

Thanks to our board member Jennifer M for submitting the requests. If you want to help us have even more cities across Canada proclaim CHD Awareness Week 2022, email us at [email protected] to get involved!

 

Les villes canadiennes proclament la Semaine de sensibilisation aux cardiopathies congénitales

Je suis ravi de voir que l'Alberta mène la charge cette année, proclamant...

News
jennifer
February 6, 2021
0
Images for family doing Trivia Night, children doing Scavenger Hunt and Person playing guitar for virtual concert

CCHA is thrilled to announce three exciting virtual events to raise CHD Awareness during Heart Month.

Congenital heart defects affect 1 in 100 births and is the most common birth defect. Congenital Heart Disease is a lifelong illness requiring specialized cardiac care.

VIRTUAL CONCERT

When:     Sunday February 28 at 7:00 - 8:30pm EST

Where:    Online event

Who:       4 talented musicians including Jake Ohanian, Russ Matthews, Tyler Mullendore

What:     Virtual Live concert. (to see our first concert visit https://www.cchaforlife.org/news/music-hearts-1-100-journey-virtual-concert)

Why:      To promote Congenital...

News
jennifer
January 28, 2021
0
Sad man with a beard and beanie looking out a window

Image by StockSnap from Pixabay

In October 2020 CCHA in partnership with MacEwan Nurs 424 students conducted a Mental Health survey for Canadians living with CHD. The survey results indicated that an astonishing 88% of adults living with CHD said they had experienced mental health challenges at some point.

As a result, CCHA has compiled a list of mental health resources across Canada, they can be accessed at https://www.cchaforlife.org/mental-health-resources

 

 

News
jennifer
December 1, 2020
0
Board member Christelle

 

See why our Board Members support CCHA and its mission.

Christelle Roy-Couillard

I was born with a congenital heart defect called ALCAPA. Although I’ve lived with this my whole life, it was only discovered when I was 26 years old. The fact that I lived well into adulthood without a serious outcome was surprising and I feel blessed to have made it through. Since my diagnosis, I’ve been seeing the team at the Toronto General Hospital Peter Munk Cardiac Centre. I had open heart surgery to repair my anomalous coronary artery on November 24, 2014 and due to complications, required a second surgery...

heart, heart defect, heart disease, congenital heart disease, congenital heart defect, heart health, heart surgery, pregnancy, heart condition, OHS, VSD, ASD, hole in heart

FR

CCHA is excited to announce our newest project -  CHD Unpacked: A podcast about living with Congenital Heart Disease.

This podcast is a safe space to discuss the well-being, lifestyle, psychosocial impacts and unique medical challenges faced by those living with Congenital Heart Disease (CHD). Our episodes will feature physicians, researchers and allied healthcare workers and experts in the field of CHD, as well as those with lived experience.

Be sure to check in the first Friday of each month when we launch a new episode. Some months we will have a bonus episode released on the third Friday...
CCHA logo

FR         

Date:       Monday June 19, 2023

Time:       7:30-9:00pm EDT

Where:    Virtual - videoconference and phone

2023 AGM Documents

2023 CCHA AGM presentation  PDF icon Download 2023 CCHA AGM Presentation_Final.pdf (2.02 MB)

2022 CCHA AGM minutes   PDF icon Download CCHA 2022 AGM Minutes.pdf (195.45 KB) 

2022 CCHA Financial Statements   PDF icon Download Canadian Congenital Heart Alliance Dec 2022 - Financial Statements - Final.pdf (282.31 KB) 

2023-2024  Board of Directors   PDF icon Download 2023 CCHA Board of Directors.pdf (309.37 KB)

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Assemblée Générale Annuelle

Date:       lundi 19 juin 2023

Heure:     19 h 30 à 21 h HAE

O...

CHD family picnic in Edmonton, July 9, 2022, for heart defects

 

You are invited to the Congenital Heart Family Picnic in Edmonton, AB

When: Saturday July 9, 2022 11am - 2pm

Who: All children with Congenital Heart Disease and their families

Where: in person at Rundle Park

To register https://docs.google.com/forms/d/e/1FAIpQLSfWPL5jPL0ptaDag6Mof2szqISSlmMC...

Stay up to date through social media with @virtualheartconnection

Facebook:  https://www.facebook.com/VirtualFontanCamp/

Instagram:  https://www.instagram.com/virtualheartconnection/

For questions, email...

image of heart model for congenital heart defects and heart disease
The Canadian Fontan website is your one stop shop for all things Fontan related, whether you are a health care provider or living with Fontan. Follow the link to find out everything you need to know about Fontan physiology, how far we have come and what we hope for the future.

The Canadian Fontan website and registry is for adults and parents of Fontan children as well as CHD medical professionals. The site includes patient stories, educational resources, registry and notification of research projects. Check it out!

https://canadianfontan.com/

 

#CanadianFontan

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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