Canadian Congenital Heart Alliance

#CHDAwareness

News
jennifer
February 14, 2018
0

Thank you to Marilyn Gladu, MP (Sarnia_Lambton, ON Opposition Health Critic) for reading our statement in the House of Commons and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada.

 

https://www.facebook.com/MPMarilynGladu/videos/920094518165380/

News
jennifer
December 14, 2017
0
#1in100

Hey Canada.

CCHA is challenging you to find your 1 in 100 Champion!

Share your video, picture or story of your 1 in 100 Champion on social media to help raise awareness for Congenital Heart Disease #CHD. Tag us in your post @cchaforlife on Facebook, Twitter or Instagram using the hashtags #1in100, #CHD, #CCHA.  Not on social media - no problem. You can still share your 1 in 100 Champion video, picture or story by emailing them to us at...

News
jennifer
July 29, 2017
0
Health records

Toronto Star reporter Kristin Rushowy shining the spotlight on issue of medical records retention, a growing problem for Canadians living with CHD who had surgery as a child.

https://www.thestar.com/news/queenspark/2017/07/28/medical-records-of-sick-kids-should-be-kept-for-life-group-urges.html

Jimmy Kimmel

Much love to Jimmy Kimmel as he shares the emotional and heartfelt story of his family's CHD journey with their newborn son 'Billy'', born with Tetralogy of Fallot and Pulmonary Atresia.

A story that many people living with CHD, their parents and families and friends can relate to and understand.

https://youtu.be/MmWWoMcGmo0

A huge thank you to Jimmy Kimmel for the very powerful CHD Awareness and Advocacy story!

 

See as Dr. Oz explains about Tetralogy of Fallot to Jimmy Kimmel and some great insight into the incredible teams that perform these CHD surgeries.

https://youtu.be/6yKh2hNYBYo

 

Shaun...

 

Join Team CCHA on Saturday May 27th to walk or run while raising money for the Canadian Congenital Heart Alliance (CCHA).

Come out for fun, exercise, meet other CHD patients and their families and support a worthy cause all the same time!

Online registration is now open! Join Team CCHA today.

Date: Saturday May 27th

Where: Ontario Science Centre, 770 Don Mills Road & E.T. Seton Park (Sunnybrook Parkland) located in Toronto, Ontario map. 

Time: 8am - 12 noon

The event features programs for people of ALL ages.  Participants have a choice of:

  • Walk: 3km or 5km;
  • Run: 5km or 10km competitive...
Transitioning from pediatric to adult CHD care

Transition

Children pass many  milestones growing up, the first day of kindergarten, the liberty of becoming a licensed driver and -going-off-to-college or university, just to name a few. Parents give the necessary “talks” about responsibility, risk and behaviour. These transitions are thought of as rites of passage.

Prepping our youth for entry into adult health care should be no different than transitioning into college, university or into the workforce.  At some point, most individuals will assume responsibility for maintaining and managing their own health. There remains work to do to...

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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