Canadian Congenital Heart Alliance

#CHDAwareness

News
jennifer
January 24, 2020
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Take our survey

We want to hear from you!

We are looking for feedback from teens, young adults and adults and their families about their experiences - past or current in transitioning from pediatric to adult CHD care. 

Below is a link to a brief survey (5 min) to tell us about your experiences.  We wil use your feedback to create educational materials and resources.  We look forward to hearing from you!

Create your own user feedback survey

https://www.surveymonkey.com/r/5QQHRHY

 

 

News
jennifer
November 29, 2019
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75th Anniversary of 'blue baby' surgery

Today we celebrate 75 years since the first "blue baby" surgery by Alfred Blalock, with Helen Taussig and Vivien Thomas on November 29, 1944.

Picture of Dr. Alfred Blalock, Helen Taussig and Vivien Thomas

The child was 15-month-old, Eileen Saxon, the surgery was a success and she went home after 3 months.  Unfortunately her cynotic episodes returned and 2 days before her 2nd birthday, she underwent another operation, she passed away 5 days later.

Now known as the BT or BTT shunt, the surgery was a success and really the start of #CHD surgery.  We have come a long way since then, with an almost 95% survival rate into adulthood now. 

Between 1947 and...

News
jennifer
November 24, 2019
0
#GivingTuesdayCA is December 3

GivingTuesday Countdown

Thank you for helping us raise $860! 

Be part of something BIG!

So, what IS Giving Tuesday anyway?  Giving Tuesday video

Giving Tuesday is a global movement dedicated to giving back. After the excitement of Black Friday and Cyber Monday, comes Giving Tuesday. Charities, Communities, Businesses and Individuals just like you have the opportunity to give back and make a big impact.

The season of giving is upon us, and what better way to spread some holiday cheer than to raise awareness for CHD (Congenital Heart Disease), the number one birth defect affecting Canadians of all ages.

Check back here...

News
jennifer
February 6, 2019
0
MP Marilyn Gladu recognizes February 14th as CHD Awareness Day in Statement in House of Commons

 

Thank you to Marilyn Gladu, MP for supporting Congenital Heart Disease (CHD) awareness in Canada and Canadian Congenital Heart Alliance.

By reading your statement in the House of Commons today and recognizing February 14th as Congenital Heart Disease (CHD) Awareness Day in Canada, you help increase awareness and advocacy for the more than 250,000 Canadians living with Congenital Heart Disease, many who require lifelong specialized care.

Marilyn Gladu is the MP for Sarnia-Lambton and serves as the Shadow Minister for Health in the Official Opposition

News
jennifer
January 28, 2019
0

2019 Faces of CHD campaign

During Heart Month 2019, we highlighted CHD stories of our members from across Canada. Thank to everyone for their stories of strength, perseverance and hope and for sharing their experience with the community of CCHA and anyone who has been touched by Congenital Heart Disease.

 

Meaghan S' story  Meaghan S' Faces of CHD story  PDF icon Download Meaghan S_Faces of CHD story.pdf (76.53 KB)

 

Rita F's story  Rita's Faces of CHD story  PDF icon Download Rita F_Faces of CHD story.pdf (72.09 KB)

 

Michelle K's story Faces of CHD Michelle's story   PDF icon Download Michelle K_Faces of CHD story.pdf (1.02 MB)

Amanda C's story CCHA Faces of CHD in Canada - Amanda  PDF icon Download Amanda C_Faces of CHD story.pdf (837.88 KB)

Shelley C's...

News
jennifer
December 13, 2018
0
Aiden and PM Trudeau

image source: Make A Wish Eastern Ontario

Aiden's Prime Minister of Canada for a Day Wish Granted

Aiden Anderson, a 15 year old from London, ON finally had his Make A Wish granted this week.  Aiden has had a passion for politics since he was in Grade 7 when he first made his wish.  Aiden and his family are members of CCHA and part of our Hearts of London/Middlesex chapter in London ON.

This week Aiden's wish came true with an incredible once in a lifetime experience thanks to Make A Wish Eastern Ontario and Make a Wish Southern Ontario. His 4 day journey included

  • An official Prime Minister's...
News
jennifer
November 20, 2018
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CCHA Named Feature Charity of the Month

We are honoured to be named feature charity of the month by First Edition First Aid Training!

Thank you for recognizing our organization and the hard work we do to support children and adults in Canada living with congenital heart disease #CHD through education, research and advocacy.  Your recognition helps to shine a spotlight on Congenital Heart Disease and increase CHD awareness.

To read the full article visit:  http://bit.ly/2Km34Dm

News
jennifer
August 17, 2018
0
Organ donations help save lives.
 
“Every week 5 Canadians die while waiting for a transplant. Yet, a single donor can save up to 8 lives through their organs, and save or heal more than 100 lives through tissue donation.”
 
Click the link below for more details on how you can help change organ registration system and help save lives.
 
To register for organ donation or for more information, visit https://www.canada.ca/en/public-health/services/healthy-living/blood-organ-tissue-donation.html#a2 and select your...
News
jennifer
February 14, 2018
0

By Sarah Trainor, CBC

"Thrown into the strange, scary world of critically sick children, heart parents become fierce advocates for awareness." Thanks to Sarah Trainor of CBC for sharing her family's story of their son Ellis' journey with CHD. Ellis' story touches on so many issues that CHD patients and their families face, including the importance of maternal screening for heart defects, the challenges of relocating to seek life-saving medical treatment, and the incredible roles that parents play as caregivers and advocates for their children.

A great piece for generating awareness during...

News
jennifer
February 14, 2018
0

Congratulations to Nova Scotia for being the first province to declare February 7 - 14th Congenital Heart Disease Awareness Week! Way to go!

Big thanks @Brave_HeartSS @yarrowgillis @BrigadonTweets @IWKHealthCentre and everyone involved to raise awareness for CHD and make this happen.

 

 

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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