Canadian Congenital Heart Alliance

Patient Education

heart defects, heart disease, charity, CHD, heart month, heart, congenital heart defect, congenital heart disease, birth defect, 1 in 100, chd awareness, chd advocacy

 

CCHA is partnering with 3D Heart Project.

Congratulations to Dr. Carolina Escudero and her 3D Heart project team for winning the $10,000 viewers choice prize from WCCHNs 2022 BoostUP competition!

CCHA is excited to annouce we have partnered with the 3D Heart Project, an innovative cardiac project whose vision is to improve understanding for children, adults and their families of their heart defect and diagnosis by creating an open and freely accessible educational resource using 3D models. Education and access to CHD resources for individuals and families and trainees is vital to being engaged...

Fontan, heart, heart defect, heart disease, heart month, CHD, congenital heart disease, patient education, CHD education, congenital heart defect,

 

The 2022 Fontan Education Day took place on April 24, 2022. Be sure to check back shortly for information and liks to the content from the Education Day.

Be sure to check out the Canadian Fontan website and patient registry, for individuals and familys of all ages with Fontan  https://canadianfontan.com/

 

 

Province the first in Canada to offer screening to all healthy babies  By Jennifer Chevalier, CBC News. Photo Jean Delisle/CBC

 

The announcement that Pulse Oximetry Newborn Screening is coming to Ontario is amazing news for early detection of babies born with Critical Congenital Heart Defects (CCHD).

This program will help catch upwards of 150 babies a year born with Congenital Heart Disease (CHD) but who currently leave the hospital undiagnosed. “Early detection and treatment of CHD is critical in ensuring the best possible long-term quality of life for individuals that will live with this life-long disease" stated Krista Vriend, President of the Canadian Congenital Heart Alliance (CCHA). "Leadership and progress on...

Mazankowski

 

Edmonton Heart to Heart: Congenital Heart Education Forum

 

Date: Saturday, April 22, 2017, 9:00am-3:30pm

Location: Shaw 3i Auditorium, Mazankowski Alberta Heart Institute

 

Download Edmonton Heart to heart 2017 flyer.pdf (367.78 KB)

 

Registration is FREE, lunch included. Space is limited, so register early!

Please RSVP to Bonda.Toppin@albertahealthservices.ca
or 780-407-6552

 

 

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Check out how congenital heart disease stacks up against better recognized diseases in Canada! So many affected and so little awareness and funding! Get involved with CCHA, donate, and spread the word about the growing population of of "survivors" so that we can get the care and support we need to live long, healthy lives!

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