Canadian Congenital Heart Alliance

Recent Posts

Team CCHA Walk of Life group photo

Looking for a fun and exciting event this spring and help out a worthy cause at the same time?  Join Team CCHA on Saturday May 28th to walk or run to raise money for the Canadian Congenital Heart Alliance (CCHA).

BC PACH Clinic Patient Education Conference

On Saturday May 7th, 2016 the BC PACH (Pacific Adult Congenital Heart) clinic will be hosting a patient education conference: "Unique Hearts, Unique Lives" - Information for navigating life as an adult with Congenital Heart Disease.

 

Labatt Family Heart Center Family Conference 2016

The conference brings children, their familles and health professional together to share information and experiances about heart disease in children.

The goal is to enhance parent and family emotional well-being through knowledge exchange, experiential sharing and the development of informal support system. 

The 2016 Beat Retreat camp information is now available! To find out more about the camp and to print the application and medical forms please click HERE.

Adults with congenital heart disease (ACHD) may be at increased risk for post-traumatic stress disorder (PTSD), new research suggests...

To read the article please click HERE

Congratulations to Dr. Gary Webb for being awarded a Lifetime Achievement Award from the International Society for Congenital Heart Disease!

Beginning in 1980, Dr. Webb was codirector, and then director of the Toronto Congenital Cardiac Center for Adults, the first such ACHD clinic in the world. He was the founding president of the Canadian Adult Congenital Heart Network, and he was the founding president of the International Society for Adult Congenital Heart Disease.

To read the announcement please click HERE.

 

Adults with congenital heart defects at considerably higher risk of stroke 

Wednesday, 25 Nov 2015 12:31 

A study published in Circulation has shown adults with congenital heart defects to have much higher rates of stroke, compared to the general population.

The researchers from McGill University, Montreal, Quebec, Canada analysed stroke data on 19,638 congenital heart disease patients between the ages of 18 and 64, and compared them with that of the general population of Quebec, Canada. Their aim was to find the frequency, risk and strongest predictors of stroke.

Their results include:

  • Stroke...

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Congenital Heart Surgeons' Society Data Center
The Congenital Heart Surgeons' Society Data Center takes pride in their research and it would not be possible without the annual participation of the patients and families enrolled in their studies. Please click on the banner to be part of their team and to join their community.

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